program “Cheers to all Twitch‘ this Wednesday dealt with arthritis. in the field offered by Joan Carlos Mart, Several patients and several professionals, who are medical doctors and professors at the Andalusian School of Public Health, spoke about this disease. The full content of the program can be viewed again at YouTube, On GranadaDigital’s Facebook and Granada Digital’s Twitch.
Joan Carles March started the program with a talk she had with various patients. arthritisHe talked about his experiences. Participants are María Ángeles Fernández, president of the Rheumatism Foundation and ASEPAR Association; Encarnación Durán, instructor of active patients in the Arthritis Class of the School of Andalusian Patients, formerly a patient with Juvenile Idiopathic Arthritis (JIA) and now with Rheumatoid Arthritis; Rosa Mariscal Sánchez, president of AJEREA, and Isabel Pérez, delegate for Conarthritis in the Balearic Islands.
Rosa Mariscal said her psoriasis started when she was just nine years old and has been suffering from arthritis since she was 18. “I’ve had arthritis for 31 years,” she said. María Ángeles Fernández, on the other hand, has suffered from arthritis for 57 years, ever since she started getting the disease when she was just nine months old. Isabel Pérez said she has had rheumatoid arthritis for 23 years.
All these patients have What is life like for a person with arthritis? For María Ángeles, “Life has changed a lot from 57 years ago to the one we live in today. Life used to be not life, you couldn’t choose to be good or have a minimal quality of life. Today, a person with this disease can have an acceptable quality of life. This requires early diagnosis and good treatment. It is a complicated life because you do not forget that you have this disease 24 hours a day, 365 days a year. Your quality of life drops drastically in all areas of your life.”
Encarni, on the other hand, underlined that biologicals have made him “another type of life”. “You never forget, you have to organize everything and plan everything in advance, but I already feel like a normal person. I can go out and dance a little, things I’ve never done before. When I was 16, I had a lot of pain, took a lot of pills. I was born sick, I was a sick girl.” “Although we still don’t have everything patients deserve, the world has completely changed, thank God. We need a multidisciplinary team that we don’t have.”
Isabel underlined that she did not remember having arthritis until today, as she was very active and did not feel “no deficiencies” in her life. “23 years ago I had to adjust to living with the disease and it was very complicated. I was 30 years old, I had small children, and I had to change a lot of the activities I did at that time. Arthritis and I have adjusted. The whole thing about opening bottles, jars, I already know what to do when I live with it. Now I have some accessories and I open them with ease. I am used to living with these restrictions,” she said.
For Rosa, arthritis is her “life partner”. This patient described how she couldn’t be on biologics because she suffers from Crohn’s disease and that she’s “psoriasis free” to date, this has caused spotting earlier in the summer and will “wear a sweater or pants”. “Something about opening a box… I want to write to the tuna shop every time I go to do it because I can’t open the box. The door thing is an adventure for me. About the buttons, we all know what we’ve been through. Wearing socks was torture. Painting our eyes is another adventure,” he said day after day. told.
Mari Ángeles also commented to the ASEPAR Association that people who have been diagnosed do so “with fear and uncertainty” because “they think about what their health will be like and what their health will be like if they are able to work in the future”. children, being able to raise them, etc. She also stated that they were “concerned about medication, getting chronic, having a sedentary lifestyle at work,” she said. “We’ve come a long way in research and treatment, but patients demand comprehensive care. They want them not to have to give up their jobs, their families, and their lives,” he said.
These patients stressed the importance of patient associations so that those suffering from the disease can find help and information about arthritis, a disease they feel needs “more visibility.”
in the next block “Cheers to all Twitch”, Chatted with Joan Carles March various professionals: SER president and also Medical Director of the Universitario de Canarias Hospital, JSV of Rheumatology since 2007 and professor of Locomotor System Pathology at the University of La Laguna. Sagrario Bustabad Reyes; Virgen Macarena Hospital Rheumatology JSV and Andalusian Ministry of Health director of musculoskeletal planning, Dr. Jose Perez Venegas; Dr. Dr. Enrique Raya, Rheumatology JSV of San Cecilio Hospital in Granada and pediatrician and Pediatric Rheumatology Unit specialist at Sant Joan de Déu Hospital in Barcelona. Jordi Anton.
Sagrario Bustabad stressed that “arthritis has changed in recent years for patients” as they “go from getting virtually no treatment to having a large suite of drugs that improve their quality of life”. José Pérez also stressed that therapeutic targets are now “clearly defined” and “reduced if a therapeutic strategy is initiated within the first 12 months”. “Early diagnosis is important for patients to achieve quality of life. “I think this can be achieved with a good relationship with primary school and the therapeutic alternatives we have now.”
Dr. Enrique Raya also emphasized the importance of therapeutic strategy involving different healthcare professionals. “This sharing is an achievement for the patient and a learning experience for rheumatologists. The other partner sees the disease from a different perspective. Nursing is also very important,” she said.
Pediatrician Jordi Antón, for his part, noted: arthritis in children “It stays in the background a bit.” “We know that children can develop juvenile rheumatoid arthritis. All treatments that improve quality of life come to the field of pediatric rheumatology. 22 years ago they had a pool at Sant Joan de Déu Hospital to put children in hot water before rehab. Today we have children living normal lives, some of them competitive sports. “What we have seen in these years is amazing. When cooperation between specialties is made, much more is gained than lost,” he stressed.
These professionals also told Joan Carles March about their work and research at the hospitals where they work. March stated that in addition to the importance of medications for patients, it is also important to establish healthy lifestyle habits. Regarding this, Enrique Raya said that there is a lot of emphasis on rheumatoid arthritis. tobacco, Because he “It is necessary to suppress this habit.”. Tabernacle Bustabad announces it’s important physical exercise so that patients with arthritis “have less pain”. “Many think they can’t do any exercise. But I think they should be aware that they will get stronger with treatment, exercise and strengthening the muscles,” he said.
Another important issue for arthritis patients is overweight and obesity. Doctor José Pérez said it was “up to the patient, it’s his responsibility” and that he “must do the right things for his health because the results are better”. In this sense, Jordi Antón pointed out that it is important to “correct the habit of the child and the whole family” and also to “fight against the idea that a child with arthritis cannot exercise”. “You have to prescribe physical exercise,” he said.
Joan Carles March asked these experts how they saw the future of arthritis, and they all agreed that it was “encouraging” because it was a “radically changing” disease as there were “quality-of-life-enhancing drugs.” They also consider it important to have “early detection” where the role of Primary Care is crucial.
Miguel Ángel Calleja, JSV for Pharmacy at the Hospital Virgen Macarena and Pachi Gallo, a retired family doctor and Professor at the University of Granada, former president of SEFH, who is also the coordinator of the national consensus on Biosimilars. Calleja emphasized that while there are “various aspects that need improvement”, such as “patient selection and the patient’s perception of functioning,” expectations from this disease are “getting better and better”. “The patient leads a normal life, but forgetting about being sick is the goal in the coming years,” Calleja said.
Pachi Gallo appreciated The role of family physicians in patients with arthritis. “Our job there, we are the ones who are responsible for making the diagnosis as soon as possible. We are at the forefront of care when the patient begins to feel symptoms. We have an opportunity for this patient not to wait.” On the other hand, he pointed out that it is important that family physicians do not give up on being their patient while arthritis patients are being treated by a rheumatologist.
To wrap up the program, Joan Carles March interviewed Laura Cano García, a Rheumatology nurse at Carlos Haya Hospital and a researcher at IBIMA, and an arthritis patient. Laura Cano explained that nursing “has a lot to do, from treatment changes to specifying healthy lifestyle habits.” It is important for this nurse that the patient “learns to manage their symptoms” because otherwise it will “go wrong”. Finally, Laura Cano talked about a study they conducted in collaboration with other centers such as Reina Sofia, Virgen Macarena and La Candelaria to analyze “the effect of sarcopenia on rheumatoid arthritis in people over 65”.
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